Epidermolysis bullosa is any of a group of disorders which are characterized by skin blisters which develop as a result of minor injury.
Regular Blogs
This blog follows the short life of Anabella, who suffered from Recessive Dystrophic Epidermolysis Bullosa, the rarest form of EB. There are in-depth descriptions of the disorder as well as the chronicle of her bone marrow transplant and death from complications of that transplant. The blogging continues, even after her death, with information about benefits, the disorder, and family matters.
http://careforanabella.blogspot.com/
The mother of an infant born with EB journals her daily life with poetry, photographs, and videos, as well as descriptions.
http://randycourtneytripproth.blogspot.com/
Zack started this weblog when he was in kindergarten, and it explains what epidermolysis bullosa is, the symptoms, and what it is like to live with it daily as a young child. There are many photographs here as well.
http://learnaboutzack.blogspot.com/
